4Matters, does not only think about protecting the environment but tries to help around with other social activities. This time,we have become online media partner with Society for Thalassemia Awareness (STA) ahead of World Thalassemia Day on May 8th,2015. Other partners involved is Geeky Social, who are Event Media Partner. To know more about the event, please check the facebook event mentioned below.
Who are STA?
Society for Thalassemia Awareness (STA) started its journey with the slogan – “No More Thalassemia”. STA’s vision to save the future generation from having this genetic disorder and reduce the number of Thalassemia patients in Bangladesh. With the vision in mind, STA plans to organize awareness programs aiming to spread awareness among the new generation about the disease and its severe impact on the patients’ physical, psychological and social well-being.
What is Thalassemia?
Thalassemia is a genetic blood disease, which results in mild to severe anemia. It is an inherited blood disorder characterized by abnormally less hemoglobin and fewer red blood cells in the body. Thalassemia patients’ life depend on regular blood transfusion; otherwise the loss of hemoglobin in blood will lead the Thalassemia patient to Death within the first decade of his/her life!
Treatment for patients with Thalassemia Major includes chronic blood transfusion in every two to six weeks; intake of oral pills and injections for Iron Chelation, which is a process through which excess
iron is removed from the patient’s body. Only bone marrow transplant can cure the disease which is out of reach of our common people. The worst scenario is found when it is seen that Thalassemia works as an energizer to many diseases such as Iron overload, bone deformities, enlarged spleen, diabetes, heart problem, liver cirrhosis etc.
Thalassemia in Bangladesh is increasing with an alarming rate. Every day more than 20 new babies are born with this disorder and at present there are more than 400,000 living patients in Bangladesh.
Although Thalassemia cannot be cured by conventional treatment, it can be effectively prevented by stopping marriage between two Thalassemia Carriers. If both the parents are Thalassemia Carriers only then there occurs a chance that their children can be Thalassemia patients. In Bangladesh. around 11.2 million people are Thalassemia Carriers most of them don’t even know about the fact, as a carrier doesn’t possess any abnormal symptoms.
Thalassemia Carriers can be identified by a “Pre-marriage Blood Screening Test” (known as Hemoglobin Electrophoresis). Just take a simple Blood Test (Hemoglobin Electrophoresis) before marriage to find out whether you are a Thalassemia Carrier, prevent marriage between carriers and give your child a healthier and happier life.
If you are interested to drop by the event and know more about it, please find the facebook event page here.
Courtesy of Sonia Rezina, Treasurer, Society for Thalassemia Awareness (STA)